This website is a collection of CFIDS research articles. All articles also have an mp3 version (available in podcast format) read by NeoSpeech Paul.
Why this blog?
I can’t think of any other group of patients who so rebel against the treatment the government recommends (for CFIDS in most countries this is CBT – Cognitive Behavioral Therapy – or GET – Graded Exercise Therapy).
There is one very simple reason for patients getting so angry: the recommended treatment does not work. And more and more it’s getting clear why this treatment doesn’t work – there are a lot of things going biochemically wrong.
If I could think myself better I’d be back to doing what I did before – travel, study medicine, play four kinds of sports, have a job, and go out with friends – instead of being stuck at home.
I am so very tired of reading yet another article on how people with CFIDS are too perfectionistic, probably had a traumatic childhood, and GET/CGT is the miracle cure. It’s such an enormous waste of research funds, and the only ones helped by those types of articles are the researchers, NOT the patients.
And to make matters worse, it’s history repeating itself – Strange collection of symptoms? Don’t know what’s wrong? Can’t find an obvious cause? Can’t test it? Then it must be somatization…
The way CFS patients are treated today used to be how MS patients trying to fight the demyelination, or Parkinsons patients balancing their dopamine were treated. Imagine doctors telling them today it’s all in their head, or that they’re not trying hard enough or that everyone gets a little tired at times.
The first CFS outbreak was in 1934.
It’s time to stop wasting money and start focusing on solid biomedical research. We need a cure.